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  • January 18, 2016

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    Every time I get bloodwork done and there are high ANA levels, my doctors just continue looking for more symptoms. It's like they want me to have 14/14 and even if I have 9/14, it isn't enough for them to be ready to do something. Kinda like how I've had ridiculous menstrual pain for the last 13 years but no one even sent me for scans on my pelvic area until the past 10 months. And they wonder why people are trusting the system less and less. Thanks for the video... I feel validated in my complaints with how my ANA results are being ignored..

    Ive had issues for years now, being tossed around from doctor to doctor. Finally my ana blood test came back positive and referred me to a rheumatologist, but this rheumatologist hasnt even scheduled me and say they lost my lab work etc...so finding another. Could a positive ANA also hint that you may have cancer Since cancer is an autoimmune disease I have major pain esp in upper spine feels like its all bunched up, major fatigue and nausea, joint pain and soreness, dizziness, ive had seizures on occasion, migraines, bloated stomach, diarrhea, rash on my bottom, i have jaundice... i just dont know what else this could be... i feel like im dying and that no one cares about me... i have medicaid and its hard to find anyone that accept it... i had a mri on my brain done last year and it came out normal... only thing abnormal was my ANA blood test. Ive also been to a chiropractor who did an xray on my spine and nothing is wrong with my spine... so confused... i just wanted to feel normal again and raise my children right. Im 26 but i feel like im 80...please help me. .
    I'm ANA positive three times now with terrible joint pain in many of my joints and some swelling. I'm told it's false even as a speckled pattern. Why all this pain that sent me for these tests anyway then Why do they test for ANA if they're not going to believe it when it comes back positive I've seen my GP many times and two rheumies who blew me off. I've been at a pain clinic. There's no where else to turn now. I'm in Canada. Boy I wish my Doc/s could see this..
    I'm ANA positive with a lot of joint pain and also in a wait and see place. I wish I could show my doc this video. I was even told after testing positive twice that it's a false positive. That doesn't make sense to me especially since my health is declining..

    I went to the doctor and complained of fatigue and mild joint pain. The doctor ran some test and said the ANA test was positive, but my RA Factor came back within range and there was a Vitamin D Deficiency. She canceled out me getting a referral to the rheumatologist even though she said it could be early signs of Lupus or another disease She basically blew it off and gave me a vitamin d prescripton and told me see you in a couple months... Because she ignored it I did too but now I'm seeing I'm going to have to do more research and get a second opinion before I have a REAL problem later on. Thank you for putting this knowledge on youtube it's a huge help to understand whats going on with our bodies and health. .

    I totally agree with you. A rheumatologist told my that my blood work say that I have an autoimmune disease due to a car accident I had in 2005. He also said that I am fine, but any time anyone goes to do blood work it will say I have Lupus and that I do not have to worry because I am eating right and exercising. I agree with you 100%God Bless.

    ANA 1:640... Is this high enough or just some fun Doctor took me to the hospital cos of high ana and then took me to many testings finaly there wasn't nothing important /apart from vaskulitis/vaskulopaty in brain/ but it isn't big illness so we will "WAIT AND SEE" how I will do and then we will do with it something - maybe - if something will be damaged or blood test won't be good... I am on Prednison it make it worse,it put imune syst.down so we don't know true about body. I am scared. .

    I'm interested to hear what sorts of things you can do to prevent a high ANA level from progressing to full blown Lupus or whatever. Is there anything you can do other than giving steroids My Dad has a high ANA level and they're thinking it might be Sjogrens but it's not advanced enough for him to be given the diagnosis yet..

    You are a wonderful speaker with great energy! I am a nurse and have really learned a lot from you! I also have some of the health issues you talk about. Its really making me think now. Thankyou so much for taking the time out to do all of this!.
    I have a positive ANA at 1:640, FANA screening reveals Speckled at low titers and Homogeneous throughout. Rheumatoid Factor is positive as is C-Reactive Protiens. I have constant pain of muscles cramping (like charlie horses) and it causes a pulling on the nerves which resulted in two tennis elbow and now is happening on large tendon in my leg...and like you say in your video...they wait. They tell you to just live with it. .
    ANA 1:640... Is this high enough or just some fun Doctor took me to the hospital cos of high ana and then took me to many testings finaly there wasn't nothing important /apart from vaskulitis/vaskulopaty in brain/ but it isn't big illness so....
    My God! It's as if you were making these videos about my life!!! Unbeleivable... My doctor said that "Oh, it's nothing significant, let's wait and see if the results go back to normal. And even if they don't - it's not high enough for concern." I was diagnosed with Fibro, and have no idea what to do about it at this point. .

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  • January 19, 2016

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    Excellent video. Thank you. It took years before I was diagnosed. Plaquinil helps. Folks, you don't need a positive DS DNA test (or something like that - my fog is bad today - to be diagnosed with SLE. There are several antibodies they can test for along with your sed rate, symptoms, response to trial run of meds, etc. If one rheumatologist says you don't have Lupus because of a negative DS DNA test and you are getting sicker keep searching. Help is out there. Hugs:).

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  • 04 April 2016

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  • April 28, 2016

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